hjemmeside > websider og
bøger
Websider og bøger
De følgende links er udelukkende til Jeres orientering. Vi har
besøgt samtlige de linkede websider og efter vores bedste overbevisning
indeholder de værdifulde oplysninger for forældre med mentalt handicappede
børn. Vi kan eller vil dog ikke garantere for lødigheden eller indholdet af de
linkede websider.
MEGET
VIGTIGT Hvis du er en desperat forælder til et barn, der
måske er mentalt handicappet (vi har selv prøvet turen!), skal du straks gå til
vores "åndelige førstehjælp" for at får orden i de forvirrede tanker og en praktisk handleplan, inden
du tester dit barn. Hvis du ikke har sat dig grundigt ind i dit barns symptomer
og adfærd, kan du simpelthen ikke bruge testene på denne side!
Danske links
Foreninger
ADHD
Foreningens store officielle webside. Kommer godt rundt om ADHD, inklusive
debatforum og mange andre nyttige tjenester. Mange givtige (ofte gratis!)
seminarer og møder.
En
fin side om voksne med Tourettes syndrom redigeret af Uffe Richter. Der er et
meget besøgt åbent forum, og voksen Tourette gruppen, der holder til på denne
side er meget aktive og arrangerer bl.a. voksentræf.
Den
danske Tourette forening, der arrangerer nogle børnetræf 2 gange årligt.
q http://www.autismeforening.dk/
Landsforeningen
Autisme.
Videnscenter
for autisme.
Landsforeningen
LEV, der er alle mentalt handicappedes fællesorganisation i Danmark. Mange
arrangementer og andre aktiviteter for handicappede.
Generelt
Har
mange interessante sider om ADHD og et fint debatforum.
Netdoktor.dk
har et debatforum om ADHD og en udmærket, kortfattet beskrivelsen af
sygdommen..
Hjælpemiddelinstituttet,
amtskommunal institution. Bl.a. hjælpemidler til handicappede, f.eks.
kugledyner
Center
for Små Handicapgrupper. Flere hundrede beskrivelser af sjældne handicaps og
syndromer, mange links
Adoptivbørn
q http://www.adoption.dk/hyppige/damp.htm
Adoption & Samfund har tit artikler om
ADHD, da mange ældre adoptanter får børn med ADHD og andre mentale lidelser,
oftest uden at få det at vide fra hverken adoptionscenter eller barnets
børnehjem.
Forældre og
lærere
Debatforum
for forældre med handicappede børn.
q http://www.ordblindeinstituttet.dk/damp.htm
Tilbud
til ADHD børn, der som regel lider af vekslende grader af ordblindhed
(dysleksi).
Autisme
q http://www.autismeforening.dk/
Landsforeningen Autisme.
Foredrag
og kurser
ADHD
Foreningens store officielle webside. Mange givtige (ofte gratis!) seminarer og
møder.
Den
danske Tourette forening, der er lille men nødvendig for denne oversete, men
udbredte sygdom.
q Foredrag
med forfatteren H.W. Gade
Foredrag
med forfatteren til serien Hverdagen med ADHD, Tourettes syndrom, Aspergers
syndrom, retarderede børn og tidlig skade.
Bøger
Tore
Duvner: Umulige børn
Det
hyperkinetiske syndrom, Hans Reitzels Forlag
Susanne
Freltofte. Hvor slipper DAMP'en ud?
Dysfunktioner
ved forskellige typer ADHD. Borgen.
Inge
Beese. Afgrænsning og behandling af børn med MBD/DAMP
Christoffer
Gillberg. Urolige, kluntede, uopmærksomme børn - DAMP, MBD, ADHD - et
barn i hver klasse.
Åsa
Gravander. At håndtere livet: personlige beretninger om at leve med DAMP.
Borgens
forlag
Birgit
Christiansen. DAMP og
medicin
ADHD foreningen
A.
Jean Ayres: Sanseintegration hos Børn
Generelt
om motoriske forstyrrelser. Gyldendal
Anegen
Trillingsgaard. Kun få vokser fra det.
Dansk
Psykologisk forlag
Dorthe
Damm. Unge med DAMP
PsykInfo
Forlaget
Märta
Tikkanen. Sofia - voksen med DAMP
Forlaget
Rosinante.
Ole
Sylvester Jørgensen. Mellem autisme og
normalitet
Aspergers syndrom, Hanz Reitzels Forlag
Svenske links
Foreninger
Riksförbundet för rörelsehindrade barn och
ungdomar. Det store officielle svenske website.
q http://www.attention-riks.nu
Riksförbundet
Attention - Intresseorganisation för neuropsykiatriska funktionshinder. Stor site med mange informationer.
Generelt
q http://welcome.to/neuronatet/
Neuronätet om ADHD, Tourettes- och
Aspergers syndrom. Virkelig
interessant med mange nye tanker om ADHD og autismes natur og fællestræk.
Debatforum.
Forældre og
lærere
q http://home2.swipnet.se/~w-27712/mats/omdamp.htm
Mats
hemsida. Fremragende webside med bl.a. en masser af gode råd om den praktiske
håndtering af ADHD. Er et must, også for danske forældre (lær så svensk! Det er
vores broderfolk J )
q http://www.torget.se/users/i/inmedsun
MBD
/ ADHD Lille webside med en række gode oplysninger om ADHD’s karakter, skolen
og forældrenes problemer.
q http://www.agrenska.se/agrenska/damp.html
Privat ADHD
konsulenttjeneste i Göteborg.
q http://www.sih.se/dh/swdhkat/swspec01.htm
Pædagogiske
værktøjer fra Statens Institut för Handikappfrågor i skolan (SIH).
Bøger
K. G. Sjödin: Barn med
koncentrationssvårigheter
Barnneuro
psykiatri. Tore Duvner.
MBD-Barn.
B.Bille, K.Brieditis.
MBD-Barn
i skolan. K.Brieditis.
Autism
och Autismliknande tillstånd. Ch, Gillberg
MBD/DAMP
i skolåldern. Gillberg , Kadesjö
Sofias
egen bok. M. Tikkanen.
En
riktig människa. Gunilla Gerland.
Nu
är det vår tur. Hellström, Agneta Falköping 1995
Norske links
Foreninger
q http://www.adhd-foreningen.no
ADHD
foreningen i Norge. Den store officielle webside.
Nasjonal
Kompetanseenhet for AD/HD, Tourettes syndrom og Narkolepsi
q http://www.touretteforeningen.no
Lille,
men udmærket website.
Tyske links
Generelt
Fremragende
website med tests, samtlige relevante adresser til kompetente læger og
socialcentre i Tyskland, masser af baggrundsartikler og fint debatforum. Hvis I
bor i Sønderjylland, bør I straks gå ind på denne fine webside
q http://www.auek.de/Frameset.html
Grundlæggende
oplysninger og aktiviteter.
q http://www.hyperaktivekinder.de
Oplysninger
til hyperaktive børn og deres forældre, tips og diskussioner.
q http://www.unruhige-kinder.de
På
trods af en hæslig indledningssekvens, der kan fremprovokere et epilepsianfald
og skræmme enhver med ADHD, har denne webside masser af interessant materiale
og en god test.
Svejtsiske
ELPOS er en forening for hyperaktive børn. En del artikler.
Forældre og skole
q http://www.ads-hyperaktivitaet.de
Virkelig
god webside med tests og en fremragende beskrivelse af, hvordan man behandler
ADHD både korrekt og med kærlighed. Anbefales kraftigt, hvis blot man kan en
smule tysk.
Biofeedback
Generel
webside om biofeedback.
Engelske links
British
Organizations
The
National Attention Deficit Disorder Information and
Support Service.
q http://www.youngminds.org.uk
Young Minds is a unique national charity working to promote the mental health and emotional well-being of children and young people
Inclusion links worldwide: The Inclusion Press pages The Family Village pages The Alliance for Inclusive Education (UK)
Contact a Family is a UK charity helping families who care for children with any disability or special need. We offer information on rare syndromes and orphan diseases
q http://www.learningdisabilities.co.uk
Residential care homes for people with learning disabilities
Mind is the leading mental health charity in England and Wales, and works for a better life for everyone with experience of mental distress.
q http://www.nlccommunityservices.co.uk
Northern Life Care manages houses in the community, which are homes to people with learning disabilities
Independent Panel for Special Education Advice (IPSEA) Defending children’s right to special education provision
A major network of 24 subject centres based in higher education institutions throughout the UK. Promoting high quality learning and teaching. Providing resources and information
q http://www.musicworkshop.org.uk
An award-winning project based in Kidderminster, England, which helps people with mental health problems by involving them in music based activities
q http://www.networklondon.org.uk
The Learning Disability Arts Network for London
q http://www.biofeedback.co.at
Biofeedback - Austrian Site on mental healing through biofeedback
The Biofeedback Foundation of Europe (BFE) was founded to promote a greater awareness of biofeedback among European health professionals through training workshops, educate clinicians in the use
American Organizations
Children and Adults With Attention Deficit Disorders (CH.A.D.D.)
499 NW 70th Avenue, Suite 109, Plantation, FL 33317
Phone (305) 587-3700 Website: http://www.chadd.org
Attention Deficit Disorder Association (A.D.D.A.)
1788 Second Street, Suite 200, Highland Park, IL 60035
Phone: 847 432-ADDA E-mail mail@add.org Website: www.add.org
Attention Deficit Information Network (Ad-IN)
475 Hillside Avenue, Needham, MA 02194
Phone (617) 455-9895
ADD Warehouse
300 NW 70th Avenue, Plantation, FL 33317
Phone (800) 233-9273
Center for Mental Health Services
Office of Consumer, Family, and Public Information
5600 Fishers Lane, Room 15-105, Rockville, MD 20857
Phone (301) 443-2792
Council for
Exceptional Children
11920 Association Drive, Reston, VA 22091
Phone (703) 620-3660
Federation of
Families for Children's Mental Health
1021 Prince Street, Alexandria, VA 22314
Phone (703) 684-7710
HEATH Resource
Center
American Council on Education
1 Dupont Circle, Suite 800, Washington, DC
20036
Phone (800) 544-3284
Learning
Disabilities Association of America
4156 Library Road, Pittsburgh, PA 15234
Phone (412) 341-8077
National
Association of Private Schools for Exceptional Children
1522 K Street, NW, Suite 1032, Washington, DC 20005
Phone (202) 408-3338
National
Center for Learning Disabilities
99 Park Avenue, 6th Floor, New York, NY 10016
Phone (212) 687-7211
National
Clearinghouse for Alcohol and Drug Information
P.O. Box 2345, Rockville, MD 20847
Phone
(800) 729-6686
National
Information Center for Children and Youth with Disabilities(NICHCY)
P.O. Box 1492, Washington, DC 20013
Phone (800) 695-0285
42-40 Bell Boulevard, Bayside, NY 11361
Phone
(718) 224-2999
Online Magazines
Selfhelp
Magazine for mental disorders, established 1994
ADDvance
Magazine
ADDitude Magazine
British Sites
The EEC project “Knowing Me, Knowing You”
q http://www.mentalhealth.com/
Large general British Site
q http://www.practicalparent.org.uk
Free Practical Parenting Advice
NHS Direct Online - Your gateway to health information on the Internet...
American Sites
General
q http://www.healthyplace.com/
General site on mental disorders including chat room
General site on mental disorders with lots of information
q http://parentingteens.about.com
General website on teenagers, including mental handicaps.
ADHD and ADD
q http://www.adhdspectrum.com/home.htm
Huge links site
q http://www.understandingadhd.com/
Very professional Website
General US site for mentally handicapped
q http://childdevelopmentinfo.com/disorders/
General website
q http://www.pediatricneurology.com/
General website
q http://www.attentiondeficitdisorder.ws/
Compendium site.
q http://www.modmh.state.mo.us/mrdd/facts/adhd.htm
Article on ADHD
Huge site
q http://www.afraidtoask.com/ADHD
General Website
Interesting and different site
Always be careful with sites boasting to “cure” ADHD. Nevertheless, try to have a look at this alternative site.
A very good and broad Website
q http://www.healthboards.com/add
Message board
The ADD ADHD Information Library
Testing for ADHD
q http://www.mindfixers.com/newhope.html
Very professional test
q http://www3.sympatico.ca/frankk/29.html
Adult Tests
Still under construction
Autism
The National Autistic Society (NAS) is the UK's foremost charity for people with autistic spectrum disorders and their families
General autism site
General
autism site
q http://www.autism-society.org
General
autism site
Tourette
q http://www.tourette-syndrome.com
Huge professional site
q www.klis.com/chandler/pamphlet/tic/ticpamphlet.htm
Jim Chandlers Tourette website. A lot of information.
q www.qconline.com/online/authors/hernandez.html
Father Hernandez. Extremely interesting book on Tourette.
Hope Press. Tourette og ADHD.
Parents
Parents’
site
Parents’
site
q http://www.conductdisorders.com
A
parents’ site
Easy to navigate and read
General parents’ site with advice on ADHD, too
Commercial site with some interesting advisory listings
q http://www.addresource.com/default.adhd
Fine Add (ADHD) resource site
q http://www.adhdlivingguide.com/default.htm
General site
Schools and
Education
General school site
q http://kidshealth.org/teen/mind_matters/school/adhd.html
General site for teens, including kids with ADHD
General kids’ site with some ADHD stuff
q http://www.teachers.net/mentors/special_education/
Resource site for teachers of handicapped children
Medicine
q http://medical-dictionary.com
Medical expressions explained
q http://www.brainplace.com/bp/default.asp
Very interesting site on the brain, how it works and mental disorders
q http://www.tourettesyndrome.net/adhd.htm
Sees ADHD and Tourette’s syndrome as two sides of the same disorder
q http://www.medbroadcast.com/
General medical site
Canadian Sites
q http://www.homestead.com/addedfocus/index.html
Online magazine
Canadian ADHD society
Australian and New Zeeland
Australian site
New Zealand site
Bøger
Essential Reading
The
facts about AD/HD: An overview of attention-deficit hyperactivity disorder.
Goldstein, S. (1999). CHADD 1999 Conference Book, Landover, MD: CHADD.
Hyperactivity : Why Won't My Child Pay Attention?
Sam Goldstein,
Michael Goldstein
Published 1992
Edward M. Hallowell, John J. Ratey (Contributor)
Answers
To Distraction
Hallowell, E. & Ratey, J. (1996). New York: Bantam Books
Practical
Handbooks for Parents and Teachers
Caring for a Hyperactive Child
Gade, H.W. (2002), Digital Books™, eBook
How to cope with the conflicts - how the child experiences the world.
Taking
Charge of ADHD - The Complete Authoritative Guide for Parents.
Barkley, R. (1995). New York: Guilford Press.
Attention
deficit hyperactivity disorders: A handbook for diagnosis and treatment.
Barkley, R. (1998). New York: Guilford Press.
The
attention deficit disorder workbook for parents, teachers and kids.
Parker, H.C. (1988). Plantation, FL: Impact Publications.
ADD
and Adolescence: Strategies for Success from CHADD
Plantation, FL: CHADD. Paperback
Patricia Kennedy, et al / Paperback / Published 1994
ADHD : How to Deal With Very Difficult Children (Human Horizons Series)
Alan Train / Paperback / Published 1997
The ADHD Parenting Handbook : Practical Advice for Parents from Parents
Colleen Alexander-Roberts / Paperback / Published 1994
David Sudderth MD, et al / Paperback Published 1997
The
Attention Deficit Answer Book : The Best Medications and Parenting Strategies
for Your Child
Michael
Boyette, Alan Wachtel, MD. / Paperback / Published 1998
ADHD and Teens : A Parent's Guide to Making It Through the Tough Years
Colleen Alexander-Roberts, Paul T. Elliott / Paperback /
Elaine
K. McEwan / Paperback / Published 1995
The Attention Zone : A Parent's Guide to Attention Deficit/Hyperactivity Disorder
Michael W. Cohen, MD. / Hardcover / Published 1997
When You Worry About The Child You Love: Emotional and Learning Problems in Children. Hallowell, E. (1996). New York: Simon & Schuster. Hardcover
Attention Deficit Hyperactivity Disorder : What Every Parent Wants to Know
David
L. Wodrich (Editor) / Paperback / Published 1994
Dr. Larry Silver's Advice to Parents on Attention-Deficit Hyperactivity Disorder
Larry
M. Silver, Hardcover
/ Published 1992
A
Vital Parents’ Guide - surviving Your Adolescent - How to Manage and Let Go Of
Your 13 to 18 Year Olds.
Phelan, T. (1994). Glen Ellyn,
Illinois: Child Management Inc.
1-2-3
Magic - Who’s in Charge at Your House?
Phelan, T. (1994). Glen Ellyn, Illinois: Child Management
Inc.
Life on the Edge : Parenting a Child With Add/Adhd
David
Spohn / Paperback / Published 1998
Power
Parenting for Add/Adhd Children : A Practical Parent's Guide for Managing
Difficult Behaviors
Grad
L. Flick, Harvey C. Parker / Hardcover /Published 1996
Assertive
Discipline - Parent Resource Guide
Canter, L. (1985). Canter and Associates, Inc.
ADHD
Handbook for Families - A Guide to Communicating with Professionals
Weingartner, P. (1999). Washington, DC: Child and Family Press.
SOS!
- Help for Parents - A Practical Guide for Handling Common Everyday Behavior
Problems.
Clark, L. (1985). Bowling Green, KY: Parents Press.
The A.D.D. Hyperactivity Workbook for Parents, Teachers, and Kids
Harvey C. Parker, et al / paperback / Published 1996
Teenagers
with ADD.
Dendy, C.A.Z. (1995). Bethesda, MD: Woodbine House.
Marilyn P. Dornbush, Ph.D., Sheryl K.Pruitt / Paperback /Published 1995
Daniel G. Amen, MD. /Paperback / Published 1997
ADD : Helping Your Child : Untying the Knot of Attention Deficit Disorders
Warren,
Ph.D. Umansky, Barbara Smalley (Contributor) / Paperback / Published
1994
Patricia
O. Quinn(Editor) / Paperback / Published 1994
The Hyperactive Child, Adolescent, and Adult : Attention Deficit Disorder Through the Lifespan
Paul
H. Wender / Hardcover /Published 1987 ( A Classic!)
George
T. Lynn /Paperback / Published 1996
Maybe
You Know My Kid: A Parent's Guide To Identifying, Understanding, and Helping
Your Child With Attention Deficit Hyperactivity Disorder
Fowler, M.C. (1990).. New York: Birch Lane Press. Comments:
Survival
Strategies For Parenting Your ADD Child
Lynn, G.T. (1996). Grass Valley, CA: Underwood Books. Paperback
Written for ADHD
Kids
Patricia
O. Quinn, Judith M. Stern / Paperback /Published 1992
Help4ADD@
High School
Nadeau, K. (1998).. Bethesda, MD: Advantage Press
Highly
recommended
ADHD:
A Teenagers Guide
Crist, J. (1996).. King of Prussia, PA: Center For Applied Psychology
Succeeding
In College With Attention Deficit Disorders
Bramer, J.S. (1996). Paperback, 189 pages. Plantation, FL: Specialty Press
The
Survival Guide for Teenagers with LD* (*Learning Differences)
Cummings, R. & Fisher, G. (1993).. Minneapolis: Free Spirit. Paperback
Learning
To Slow Down And Pay Attention
Nadeau, K., & Dixon, E
Making
The Grade: An Adolescent's Struggle With A.D.D
Parker, R.A. (1992).. Plantation, FL: ADD Warehouse.
Adults with ADHD
You
Mean I'm Not Lazy, Stupid, or Crazy?!
Kelly, K., & Ramundo, P. (1995).
Cincinatti, OH: Scribner
The
ADDed Dimension: Everyday Advice For Adults With ADD
Kelly, K., & Ramundo, P. (1997).
Adventures
In Fast Forward: Life, Love, and Work for the A.D.D. Adult
Nadeau, K. (1996)
Weiss
G & Hechtman LT. Hyperactive Children Grown Up
New
York, the Guildford Press, 1994.
Mainly for
Teachers
How
to reach and teach children with ADD/AD/HD.
Rief, S. (1993). est Nyack, NY: The Center for Applied Research in Education.
Taming
The Dragons: Real Help For Real School Problems
Setley, S. (1995).. St. Louis: Starfish Publishing Co
Harvey
C. Parker / Paperback / Published 1992
Patricia
O. Quinn(Editor) / Paperback / Published 1994
ADHD in
the Schools : Assessment and Intervention Strategies (Guilford School
Practitioner Series)
George
J. Dupaul, Gary Stoner (Contributor) / Hardcover / Published 1994
All About
ADHD : The Complete Practical Guide for Classroom Teachers (Teaching
Strategies)
Linda Pfiffner / Paperback / Published 1996
Elaine
K. McEwan / Paperback / Published 1995
Attention Without Tension : A Teacher's Handbook on Attention Deficit Disorders
Attention-Deficit/Hyperactivity Disorder in the Classroom : A Practical Guide for Teachers
Carol A. Dowdy, et al / Paperback / Published 1997
Diagnosing Learning Disorders : A Neuropsychological Framework
Bruce F., Ph.D. Pennington / Hardcover / Published 1991
How to Reach and Teach ADD/ADHD Children : Practical Techniques, Strategies, and Interventions
Sandra F. Rief / Paperback / Published 1993
Linda M. Shin(Editor), Linda M. Ross (Editor) /Hardcover / Published 1998
Geraldine Markel, Judith Greenbaum / Paperback /Published 1996
Jennifer S. Bramer, Phd / Paperback / Published 1996
Stephen S. Strichart, et al / Paperback / Published 1998
Educators Manual: Attention Deficit Disorders. An In-Depth Look From an Educational Perspective.
Fowler, M. (in collaboration with Russell A. Barkley, Ron Reeve and Sydney Zentall). (1992). Plantation: CHADD
Special Topics
Juliet L. Jett, Ph. D./ Paperback / Published 1997
Attention Deficits, Learning Disabilities, and Ritalin : A Practical Guide
Robert B. Johnston / Paperback / Published 1991
Janet Ash, et al /Paperback / Published 1996
Right-Brained Children in a Left-Brained World : Unlocking the Potential of Your ADD Child
Jeffrey
Freed, et al / Hardcover
/ Published 1997
Attention
Deficit Disorder and Learning Disabilities: Realities, Myths and Controversial
Treatments
Ingersoll, B. & Goldstein, S. (1993).. New York: Bantam Doubleday
Foredrag og kurser
Foredrag
ADHD
Foreningens store officielle webside. Mange givtige (ofte gratis!) seminarer og
møder.
Landsforeningen
Autisme.
q Foredrag med forfatteren H.W. Gade
Foredrag
med H. W. Gade, forfatter til Hverdagen med serien om ADHD, Tourettes syndrom,
Aspergers syndrom, retarderede børn og tidlig skade.
Kurser
-
Se under foreninger
